Two weeks ago my husband was diagnosed with cryptogenic pulmonary fibrosis,can someone tell us what

There is no known cause for sure for it.. and it is always fatal.

I am so very sorry, I am in tears just knowing what you have to go through..

Please email me if you need someone to talk to through this, your husband can as well.

The disease does progress fairly slowly which I guess is something on the plus side.

It isn't the lungs that finaly take the person.. it is the lack of oxygene.. my sisters resperations got so high when she passed away the hospice nurse couldn't keep up with them. They pass from either a heart attack or stroke when the lungs no long can pump oxygene..

What happened was my sisters heart took over trying to breath for her and finaly it gave out..

Make sure you get the BEST pulmonologist you can find.. please..Also when Lynns health started to go downhill bad.. she was able to get full disability as it is a terminal illness.. that will help with all the doctor bills.. and there will be a lot of them..

They will probably want to do a biopsy as well.. and luckily it seems you caught it early, it took my sis so long to get her disability.. that she was so bad off when they did biopsy we almost lost her then a year ago.. she was in the hospital on resperator for a full month..

If you pray.. pray daily.. I will send positive energies your way..

Goddess Bless.. again I am so sorry..

ps if you do not have insurance yet.. please contact the pulmonary fibrosis organization.. they helped my sister to get to a doctor initialy.