Two weeks ago my husband was diagnosed with cryptogenic pulmonary fibrosis,can someone tell us what

I am so so sorry to hear this.. I just lost my sister January 27th to Idiopathic Pulmonary Fibrosis. which is the same as your husbands but totaly unknown cause.. hence the idopathic..

I wish I could tell you something positive, My sister was diagnosed about 4 years ago.. they said she had 3-5 years and she made it 4.

There are no cures or really even treatments that do anything much for Pulmonary Fibrosis.. It will go from shortness of breath to severe pain..

The way the pulmonologist explained it to us is the lungs harden and become like concrete.. in the end stages there will be honeycombing.. where there is nothing but tiny holes for the oxygene to go in... Umm.. My sister was on oxygene 24/7 for those 4 years. it got to where just going to the bathroom was a major chore for her.. she would have to rest.. we had to get a bedside commode eventualy and even that got to be to hard for her in the end.

She passed away less than a month after we were able to get hospice..

They are coming out with newer ideas for treatments so don't give up hope yet though.. Its a terrible disease.. I wish to goddess I could tell you it would be ok that the doctors could fix it..

My sister had to take morphine regularly for pain.. like i said 24 hour oxygene.. breathing treatments, steroids.. they tried everything.. really it just prolonged the agony she was in.. She used to scream and cry at times the pain was so unbearable..